We recently sat down with Kaynath Rahman to discuss her role as a co-investigator on the Mapping the Margins project, a research initiative by the Race Equality Foundation and City, St George’s University of London looking to better understand the experiences of racism and discrimination among young people aged 16-25 years from Black, Asian and minoritised ethnic backgrounds. The project has a specific focus on experiences of young Black men with experience in the care system, and young South Asian women with physical disabilities.
Kaynath’s Journey into Research
Kaynath, a final-year nursing student, has always had a strong interest in research focusing on marginalised communities. At university, she has actively contributed to initiatives like the Let’s Talk About Race steering group, which works to address racial inequalities and discrimination.
When given the opportunity to join Mapping the Margins as a co-investigator through the Asian People’s Disability Alliance, Kaynath was eager to take part. Her passion for this work goes beyond academic curiosity, it’s deeply personal. As a South Asian woman living with a rare and invisible disability, she understands firsthand the barriers faced by marginalised groups in accessing equitable healthcare.
“This is about more than just research,” Kaynath shares. “It’s about ensuring that people with lived experiences like mine have their voices heard and their needs addressed. It’s about creating change for others who face the same challenges.”
Navigating the Challenges of Disability and Identity
Kaynath lives with an invisible and rare physical disability, which often leads to misunderstandings and stigma. “On the surface, I appear able-bodied,” she explains, “but my condition comes with severe challenges—like debilitating pain that sometimes keeps me housebound. It has even forced me to pause my university studies at times.”
Her late diagnosis highlights systemic issues such as sexism and ageism within healthcare. As a young South Asian woman, her symptoms were often dismissed or misunderstood by healthcare professionals.
Cultural and socioeconomic factors further complicate these challenges. “In my culture, there’s often a reluctance to talk about invisible, private disabilities,” she notes. “Financially, too, there are barriers. I’ve had to take taxis to medical appointments due to the pain, but many others have no choice but to endure long bus journeys.”
Becoming a Co-Investigator in Mapping the Margins
Joining the Mapping the Margins project has been a transformative experience for Kaynath. It’s given her a platform to share her lived experience and contribute to research aimed at dismantling health inequalities.
“Being part of this project has allowed me to merge my knowledge of healthcare with my personal experiences,” she says. “I’ve been able to think creatively about how to raise awareness and improve access to healthcare for marginalised people. I believe this project will act as a stepping stone for further research and action in this space.”
Reflections on the Project’s Impact
Kaynath sees Mapping the Margins as a vital step towards breaking stereotypes and addressing the unique challenges faced by South Asian and other marginalised communities.
“When someone from your background is involved in work like this, it can inspire confidence and make you feel seen and heard,” she explains. “This research is essential, not just for understanding our struggles but for showing the wider population that these issues matter. It’s a chance to create tangible change within the NHS and beyond.”
The project also emphasises collaboration. With partnerships that include the Asian People’s Disability Alliance and Prospex (a local youth organisation), Kaynath highlights its collective approach: “It’s not just about the NHS; it’s about communities too. Partnering with so many organisations shows that people genuinely care and see the need for this work.”
The Importance of Peer Researchers
As part of the project, the Mapping the Margins team is looking to hire two peer researchers to support the study. We are looking for young people with lived experiences of the issues, particularly relating to age, gender, disability and care experience.
For those considering applying, Kaynath has a clear message:
“If you meet the criteria, apply! This is a unique opportunity to learn and make a real difference for people who share your lived experiences. Your voice matters, and your involvement could inspire others to feel seen and heard. The whole team is incredibly supportive.”
Do you meet the criteria and are interested in applying?
Read more about the project here.
