The Race Equality Foundation worked on two exciting new projects in partnership with the Association of Young People’s Health, the Royal College of Paediatrics and Child Health, Young Epilepsy, and the National Paediatric Diabetes Audit (NPDA). The projects focused on young people up to 25 years of age.  

Project 1 – Young people with Type 1 diabetes

Type 1 diabetes accounts for the majority of diabetes in children and young people. We wanted to better understand the experiences of young people from these backgrounds and in particular, how they manage their diabetes and also if they use technology at all to help them with this.  

Project 2 – Young people with epilepsy

Epilepsy is one of the most common conditions that can affect you from childhood. We heard from young people about how they care and manage this condition, and how it affects their everyday life.

What is involved?

We talked to young people about different aspects of care, what affects how they manage their condition, and what would help them to manage better.  We held focus groups and individual interviews.  

Based on the research findings we have produced reports with recommendations on how to ensure better care for young people with epilepsy and type 1 diabetes.

Read the report on epilepsy here and type 1 diabetes here.


For further information contact

Tracey Bignall: email: or telephone: 07793 239567