About us

The study involved a collaboration between universities and voluntary and community sector organisations.

The research team consisted of:

Prof Rik Cheston

University of the West of England
Co-Chief investigator of the project

Dr Sahdia Parveen

University of Bradford
Co-Chief Investigator of the project

Dr Emily Dodd

University of the West of England
Project Manager

Dr Gary Fry

University of Bradford
Research Assistant

Dr Karan Jutlla

University of Wolverhampton
Co-Lead Work Package 1

Dr Paula Smith

The University of Bath
Co-Lead Work Package 2

Mr Jabeer Butt

Race Equality Foundation
Co-Lead Work Package 3

Mr David Truswell

Dementia Alliance for Culture and Ethnicity, London
Co-Lead Work Package 3

About us

Additionally, the study benefited from invaluable advice by public contributors from South Asian communities with experience of caring for someone living with dementia.

Disclaimers

Disclaimers

This project is funded by the National Institute for Health Research under its Research for Patient Benefit Programme (grant reference number NIHR200736).

The views expressed are those of the project team and participants and not necessarily those of the NHS, the National Institute for Health Research or the Department of Health and Social Care.

This website contains links to third party websites. We are not responsible for the content on those websites.

Acknowledgements

We wish to thank all the people who took part in interviews and workshops. A plain English summary of the project along with peer-reviewed journal articles reporting the findings will be available at a later date. Please contact the research team to request further information. The team worked with Flexible Films and Bluebell films to produce the short videos found on this website . These videos document experiences from a range of people talking about dealing with dementia in South Asian communities. We would like to thank the film companies for the sterling work they have carried out in producing these films.

This project has been funded by grants from the NIHR and Bristol, North Somerset and South Gloucestershire CCG (who also hosted the project). UWE Bristol acted as the sponsor.