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Dementia and black and minority ethnic communities: Resources

Support and Care for People Living with Dementia from Minority Communities’

http://www.ncl.ac.uk/media/wwwnclacuk/instituteforageing/files/dementia-in-minority-communities-support.pdf

Diversity and inclusiveness in dementia : listening event report, Salford, Salford Institute for Dementia

http://usir.salford.ac.uk/35270/1/Diversity-and-Inclusiveness-in-Dementia-report.pdf

Wake Up London! – The case for a London regional investment strategy to develop appropriate information and services for black, Asian and minority ethnic people living with dementia

https://www.mentalhealth.org.uk/sites/default/files/wake-up-london.pdf

What do we know about the attitudes, experiences and needs of Black and minority ethnic carers of people with dementia in the United Kingdom? A systematic review of empirical research findings

http://journals.sagepub.com/doi/abs/10.1177/1471301214534424

Black & minority ethnic older people – health and social care

https://www.kingsfund.org.uk/sites/default/files/field/field_pdf/Library-reading-list-BME-older-people-Nov2014.pdf

Perceptions of dementia and use of services in minority ethnic communities: a scoping exercise

https://onlinelibrary.wiley.com/doi/full/10.1111/hsc.12363

Gearing up Housing Associations’ responses to tenants with dementia from black and minority ethnic groups

https://www.ageuk.org.uk/globalassets/age-uk/documents/reports-and-publications/reports-and-briefings/safe-at-home/rb_oct15_diversity_dementia_gearing_up.pdf

APPG (2013) Dementia does not discriminate: The experiences of Black, Asian and minority ethnic communities www.alzheimers.org.uk/site/scripts/download_info.php?downloadID=1186

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Literature Review: Dementia in Gypsy and Traveller Communities             

General

Tilki, M (2016) ‘Dementia in Gypsies and Travellers: a brief guide for commissioners and providers’ Leeds GATE, Irish in Britain, Irish Memory Loss Alliance. http://travellerstimes.org.uk/UserFiles/Files/Dementia-in-Gypsies-and-Travellers.pdf

Tilki, M. (2016) ‘Dementia among Gypsies and Travellers’ The Journal of Dementia Care, July / August 2016, Volume 24, Number 4. https://d3gxp3iknbs7bs.cloudfront.net/attachments/4bbf837d-068d-43c1-8aac-db1e99da0c76.pdf

Tilki, M. (2016) ‘Reaching out effectively to Gypsies and Travellers’ The Journal of Dementia Care, September / October 2016, Volume 24, Number 5. http://www.irishinbritain.org/cmsfiles/Reaching-Out-to-Gypsy-Travellers.pdf

Tilki, M., (2015) ‘Dementia in Gypsy and Traveller Communities’ Leeds GATE news, 7th September 2015, http://leedsgate.co.uk/dementia-gypsy-and-traveller-communities

Leeds GATE (2016) ‘Memory loss in Gypsies and Travellers’ Visual notes by artist Tom Bailey at the launch of the new best practice guide, “Dementia in Gypsies and Travellers”, by Leeds GATE and Irish In Britain. https://www.youtube.com/watch?v=w0TwxFD5tVk

Prior, P. (2013) ‘Support and care for people living with dementia from minority communities’ February 2013, North East Dementia Alliance. http://www.ncl.ac.uk/media/wwwnclacuk/instituteforageing/files/dementia-in-minority-communities-support.pdf

Marshall, M., Tibbs, M. (2006) ‘Social Work and People with Dementia, Second Edition: Partnerships, Practice and Persistence’ Policy Press, 8 Nov 2006. https://books.google.co.uk/books?id=Sd81DwAAQBAJ&pg=PA59&lpg=PA59&dq=irish+travellers+dementia&source=bl&ots=1T47v20hgt&sig=5tY5xLJYQbmxDwE0_SOhWsb4H90&hl=en&sa=X&ved=0ahUKEwj-hvze0ObXAhWJHsAKHamUAkI4ChDoAQhIMAg#v=onepage&q=irish%20travellers%20dementia&f=false

 

Ageing

Centre for Policy on Ageing (2016) ‘Diversity in older age – Gypsies and Travellers’ Centre for Policy on Ageing – Rapid Review, http://www.cpa.org.uk/information/reviews/CPA-Rapid-Review-Diversity-in-Older-Age-Ethnic-Minorities-Gypsies-and-Travellers.pdf

Lane, P., Spencer, S., McCready, M. (2012) ‘Perspectives on ageing in Gypsy families’ Joseph Rowntree Foundation, January 2012. https://www.jrf.org.uk/sites/default/files/jrf/migrated/files/ageing-in-gypsy-families-summary.pdf

Lane, P., Tribe, R., (2010) ‘Towards an understanding of the cultural health needs of older gypsies (sic)’, Working with Older People, Vol. 14 Issue: 2, pp.23-30, https://doi.org/10.5042/wwop.2010.0264

 

Projects

Pavee Point and the Alzheimer’s Society of Ireland, Republic of Ireland https://www.alzheimer.ie/Get-Involved/Dementia-Friendly-Communities/Dementia-Friendly-Projects/Traveller-Education-Training-Pavee-Point.aspx

Outcomes:

  • An information poster about the signs and symptoms of dementia was produced for use by primary health care workers for the Traveller Community
  • As a result of the training from The Society perspective we understood more about the resources that are needed to improve awareness about dementia in the Traveller Community but also a deeper understanding of the needs of Travellers and the issues they are faced with

Accommodation

Hodges, N., Cemlyn, S., (2013) The Accommodation Experiences of Older Gypsies and Travellers: Personalisation of Support and Coalition Policy, Social Policy and Society, Volume 12, Issue 2, April 2013, p.p. 205-219, https://doi.org/10.1017/S1474746412000413

 

In the press

Alzheimer’s Society (2015) ‘A family who changed their travelling lifestyle to help support a father with dementia’ January 2015. https://www.alzheimers.org.uk/info/20159/jan_2015/638/a_family_who_changed_their_travelling_lifestyle_to_help_support_a_father_with_dementia

The Telegraph (2012) ‘Nurse faces sack for ‘cutting gypsy’s hair’’ (sic) 7th February 2012. http://www.telegraph.co.uk/news/health/news/9066341/Nurse-faces-sack-for-cutting-gypsys-hair.html

Videos

Race and dementia – Runnymede Trust: https://www.youtube.com/watch?v=FKjtO4WiPvM

Dementia services in Tower Hamlets: https://www.youtube.com/watch?v=xGzyYEps-bw

Getting to know the person with dementia: the importance of memories – SCIE: https://www.youtube.com/watch?v=ze1A3EWMQcY

 

News Articles

Why black and minority ethnic communities need targeted dementia services – https://www.theguardian.com/social-care-network/2014/sep/18/black-minority-ethnic-communities-dementia-services

Dementia: the untold story of our BME population

https://www.hsj.co.uk/commissioning/dementia-the-untold-story-of-our-bme-population/5067082.article

Cultural barriers to dementia care

https://www.yorkshirepost.co.uk/news/analysis/cultural-barriers-to-dementia-care-1-8317915 Read more at: https://www.yorkshirepost.co.uk/news/analysis/cultural-barriers-to-dementia-care-1-8317915